NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
I am not a doctor but I have been to enough not to trust one opinion. Also, anything is possible. I would google symptoms of inter cranial hypertension, aka external communicating hydrocephalus and see what you come up with. Even your dr said it was not likely, not impossible. Who knows when the last time he read up on this was. My PCP is great but told me I didn’t have the eyes for EDS. I’m guessing she thought I had to have blue sclera. I have grey per the EDS expert, but as with any condition not every patient has every symptom. The same condition can present differently in different patients.