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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Honeycomb rash?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Honeycomb rash? › Reply To: Honeycomb rash?

January 24, 2012 at 3:11 am #1698
KC
Participant

You are funny!
Well, I saw my pcp Friday… She was at a loss for the things I asked about, like telling her straight up that I want to pursue an EDS dx. One problem is that there only 2 or 3 geneticists in this area, eastern Washington state. I brought up all the symptoms I have that I think are dysautonomia related. That fell very flat. Oh, but she DID ask if I’ve ever had counseling… (b/c people with a lot of health problems get depressed and counseling can help) Before I left she had the nurse come in and check my bp when lying down, sitting up and standing up. I asked her to check my pulse, as well. She did each at 1 minute intervals. I brought up that my pulse goes up after 5 minutes, but by that time I knew I was done there. The labs she had drawn all came back normal. So, I guess I’m “fine”, too!
I would be interested if you know of any in docs in the northwest. I don’t have a lot of confidence that my insurance would cover a doc in another area, but it’s worth a try. But then I would still need her to refer. =[ Thank you!

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