Hi Nici, there are many of us with Marfanoid habitus (the appearance of Marfans, but without meeting the critieria), including myself and my kids. I’ve seen classical EDS and hypermobility forms suspected. The big underlying issue, though, is we don’t know the genes for hypermobility EDS (and 50% of those for classical). The diagnosis is of little or no help for us, I’m afraid. In fact, they can only say “presentation consistent with EDS”. Until we recognize the genes responsible, we are all sort of guessing. 🙁 Meanwhile, at least you can enjoy your height! lol