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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox Dilemma

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox Dilemma › Reply To: Diamox Dilemma

March 1, 2017 at 5:30 am #6127
Bea17
Participant

Thank you Dr Diana. I’ll try the higher dose but have always suspected a spinal fluid leak as, for 18 months after the accident, I had metallic tasting fluid in my mouth every time sat upright in the morning. Also, after my accident, I felt the need to lie down and drink water all the time. Gradually, I’ve been able to stand up longer but, in the three years since, I can only do 10% of what I used to do. The more I do, the more the pain increases and it only reduces when I lie down. Is there a test for a spinal fluid leak and is there any hope of putting this right again? I’ve never been able to understand why the consultants I’ve seen can’t diagnose my problem as am in excruciating pain every day.

Best wishes and gentle hugs to you too.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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