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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

March 9, 2012 at 5:49 pm #1808
MJ
Participant

Last week my massage therapist said my entire neck felt like steel. I could barely move. When she pressed on certain areas my arms would go numb for example. AFTER WEARING A SOFT CERVICAL COLLAR for just one week, I was in a lot less pain and my massage therapist said my neck felt better than the week before, but I had what felt like a marble on one side, and severe tightness (like steel) in an area on the other side (that gave me a headache and made me feel nauseous when she pressed on them). The pain also travelled when she pressed on them. This “marble” must be one of those knots Dr. Diana is speaking of! I will be seeing my Rheumatologist next week, and I will be bringing The Driscoll Theory and I will be requesting to be evaluated for CCSVI, External Communicating Hydrocephalus (trial of Diamox) and CCI (Cranial Cervical Instability). I will post something after the visit. Thanks Dr. Diana and everyone for all of your help!

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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