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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Left ventricular diastolic dysfunction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › Left ventricular diastolic dysfunction › Reply To: Left ventricular diastolic dysfunction

March 20, 2012 at 9:42 pm #1891
Dr. Diana
Keymaster

I think I qualify for this DX too. I had a stress ECHO June 2010, with mild/minor abnormalities all over the place, and a conclusion of “cannot rule out cardiomyopthy at an early stage”. Also says: “Diastolic dysfunction; mildly abnormal relaxation without significant increase of left atrial pressure.” If you want to know more from this report, just let me know. I am having my next ECHO in Sept.. just a couple of weeks away.

Hi Ourfullhouse, Yes, I think we’d all like to know how your echo goes!

So, overall, it would seem that CCSVI treatment and/or Diamox have reduced the pressure going into my heart and so where things were starting to enlarge, now they are fine and even the pulmonary pressure is back to normal.

I also wonder if as my veins restenose if the pressure will go back up again? Or, is the Diamox having more of an effect than the CCSVI treatment? Lots of things to wonder about! =)

Anyone else have a before and after CCSVI treatment ECHO done and were there any differences?

FASCINATING!! Diamox can lower our BP, so perhaps it helped with everything (and I wonder if that is why your BP changes were “blunted”?
This is great news, though, I think. If you knew how many patients I speak to who develop congestive heart failure and worse, it would surprise you. But this gives us soooo much hope. YEA!!! Thank you so much for sharing this, and I’ll be dying to know if anyone else noticed this. I am not due for an echo for a few months… I can hardly wait!
Big hug,
Diana

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