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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: A theory for EDSers with small heads

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › A theory for EDSers with small heads › Reply To: A theory for EDSers with small heads

March 26, 2012 at 1:39 pm #1910
Bee in oz
Participant

That’s exactly what I’m suggesting, that CSF leak (and cerebral hypotension) and hydrocephalus both result in compression of the brain (particularly the brainstem) and whilst the mechanism is very different, there are clear ways in which EDS would prepisdpose us to both conditions. There is are conditions pituitary pseudotumor and pesudo cerebi where compression can lead to tumour like syndromes. I have occassional spikes in prolactin but usually normal but I still produce breast milk (since 24, didn’t have child til 36). On another endocrine front, I have thyroid nodules and cysts on ovaries… I’m really curious about the effect of brain compression and endocrine dysfunction… I wonder about lots of things, like if our brains are perceiving raised pressure (even in the case of cerebral hypotension and brain sagging into spine) then things like fluid dumping and to reduce ICP could be a possibility? Could the fevers and dysautonomia/episodes of strange neurological symptoms and hypoglycaemia I get be part of the picture of CNS response to CSF leak.

I also remeber reading about the hypothalamic pituitary axis and CFS/ME OOH-NOOH cycle… could it be a there is a physical route to fatigue via brain compression??

I have “UBO” (Unifentified Bright Objects) on T2 MRI scans. I wonder how common this is in people with EDS and neuro/endocrine problems. Bee

Another link on cerebral HYPOtension

http://serendip.brynmawr.edu/exchange/node/1688#comment-135239
CSF Leaks and Spontaneous Intracranial Hypotension | Serendip’s Exchange
serendip.brynmawr.edu
Spontaneous Intracranial Hypotension (SIH) is a condition where a patient gets …See More

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