I am very curious what was/is of more help, CCSVI treatment or the Diamox. Or, is it a combination of the two?
Oooh, I love a puzzle! I’m just guessing on this one, OK? It may be both, but I’m leaning more towards Diamox! By taking Diamox, it allows your brain to float better, taking pressure off of your vagus nerve (and other cranial nerves below it). If the brain was compressing it hard enough, it would cause reflex low blood pressure. Did you hear that many of us go into neurogenic shock when we lie on our backs, likely from the compression of the vagus nerve? That doesn’t happen to folks with M.S. who DON’T have EDS, yet both groups have CCSVI.
CCSVI likely takes some pressure off of the vagus nerve, but works by making the vein smaller and by lowering the pressure in the vein. Helpful, but not as much as getting the brain OFF of those nerves!! Pregnancy — who knows? EVERYTHING changes in pregnancy, from our blood volume to the content of our blood, so all bets are off. 🙂 Diana