Unfortunately I have one of those doctors who’s basically allergic to technology – he doesn’t do email, he’s not on the net, he doesn’t have a Kindle, he isn’t interested in reading stuff on the screen 🙁 I’d be THRILLED to buy him a copy for $0.99 but it’s just not practical 🙁
Also I think if I give it to him on paper than it’s easier for me to go through it first and highlight bits and stick sticky notes on the pages explaining which bits seem to apply to me most strongly, etc. I must be old-fashioned but I really do seem to “think better” when I can scribble on paper instead of typing notes on a screen!!
I totally understand your frustration at the document ending up all over the place and the message getting distorted, etc. That must be infuriating when you’ve been so careful to put it all together for us!
After 37 years of not really properly fitting into any category fully, it’s like a *miracle* to read this and recognise myself in practically every paragraph! From the huge head to the EDS to the mast cell and POTS and fatigue and … the whole thing. And because of that, I want to give my doctor every chance I possibly can to react positively to it! Most of my doctor’s reaction I can’t control, of course, but at least I can present it to him in a form that he’s most likely to want (i.e.: paper) and write notes so it’s obvious to him which bits of it most match me. I guess that explains why I so desperately want it to be in hard-copy form.
I really hugely HUGELY appreciate all your time and energy and effort that you’ve spent on making this available for us. THANK YOU 🙂 🙂 <3