@mom of 3 the meds have helped with the hives but done nothing for the loose joints I have sprained both wrists , my R.ankle& fractured my left ankle!
@ Jen thanks for the reply I will check out the Driscoll Theory 2 , my Dr didn’t mention the mast cells I brought it up to her because my aunt has mastocytosis.The Dr released me for a year! I am going for a surgery consult next week because my gallbladder is so enlarged it has gone to 5% function so i’m concerned about it stirring things up again !The brain pressure would make sense of my migraines , some days I feel like my head is so full it will explode.I feel like i’m falling apart from the inside out…lol
I couldn’t have said it better than Jen! Please, please, please get a copy of Part 2 of The Driscoll Theory. Most of your questions are answered in there (some of them are toward the end, so bear with all of the scientific gobblety-gook, OK? I’m also working on a hypothesis for those of us with MCAS, mediator (-) (blood work, urinalysis and bone marrow biopsy turns out normal. Please stay close by, as I’m working on a registry for us all to have a blood test to prove this. Cool? Then we’ll need slightly different medication. Don’t go too far while I work out the details, OK? big hug, Diana