YES, I had a similar experience. I accidentally found out that I was Dxed with LV diastolic dysfunction when I asked for a report of my echo. No one thought to tell me either 🙁 I came to an enlightening realization about this presentation that I want to share in hopes that it will help others.
At the time I presented with LVDD; I was having a reaction to a beta blocker that I had recently been prescribed for severe Reynaud’s. I should have known better, BB’s and I don’t get along well. My allergic reaction presented with a numbness in my chin, that progressed up my face and into my mouth. Once my lips, and throat began tingling and going numb; I finally realized I was having an allergic reaction. I stopped the BB and had the echo redone a few weeks later- PERFECTLY normal!!! In my case, the LVDD was the manifestation of stirred up mast cells.
BTW, I am DXed with MCAS, POTS, NMH, and an unknown connective tissue disorder (most likely EDS III.)
Thank you for sharing that important information, Julie! For me, beta-blockers cased severe depression (I tried 5 of them!). Then I buried them in my backyard. 🙂 Did you see on the website under “handouts” my poster presentation about the cause of LVDD? It involves some of the cytokines the mast cells spit out. I am SO GLAD you figured that out! I’ve heard from a couple of patients that their LVDD is REVERSING with mast cell meds and CCSVI. I heard from one patient that her PULMONARY HYPERTENSION is reversing. We’re not sure if that is due to Diamox or mast cell meds. Either way, how great is THAT?!
I think I can speak for us all in saying “welcome”! Big hug, Diana