PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

April 4, 2012 at 2:36 pm #1939
MattiesMom
Participant

Ouch, ME! I tried a soft cervical collar, but could not find a way to wear it with out feeling like I am being suffocated (even though I wear it very loose). I did read a suggestion somewhere (I think it was from DR. Diana) to sleep with a towel rolled under my the neck, rather than a pillow. I have been doing this ever since I read it, and now I can’t stand to lay down without that support. (I like to place a soft ice pack on the towel to ice my neck). I also feel that my head is too heavy for my neck, and often use my hands to hold up my head.