Bee, Did you see my video on External communicating hydrocephalus? Humbly, It sounds like an overnight trial with Diamox would be worth considering with your doctors. Getting up and even moving around can help us drain CSF. It will also help drain venous blood, because so many of us have stenosed internal jugular veins. When we’re vertical, we tend to drain more out of our vertebral veins instead (take a peek at Part 2 of The Driscoll Theory, OK?
Let us know!