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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox and other meds questions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox and other meds questions › Reply To: Diamox and other meds questions

April 14, 2012 at 2:17 pm #1992
MattiesMom
Participant

And regarding the fainting or near fainting when laying down, did you already read the thread- “Do you feel sick when you lie flat on your back, or have you ever felt “paralyzed”?” on this forum?

A soft neck collar brace may be helpful? (I didn’t like it myself, but most people here do.) Instead, I roll a towel and use that at the very top of my cervical spine. I never was able to lay on my sides before, and just couldn’t figure out why- it’s like my shoulders, neck, everything collapses… But now I will not lay down without a rolled towel to support my upper neck. That suggestion (found somewhere here on pretty ill) changed my ability to lay down. I had to figure out exactly where to place the towel for support, but it helps on my side, my back when elevated to watch TV. etc.

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