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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS causing headaches???

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS causing headaches??? › Reply To: POTS causing headaches???

April 17, 2012 at 8:54 pm #2017
Dr. Diana
Keymaster

Hi, yes I can explaine the headache it feels as if my head is being squeezed, it’s not an all the time thing it comes and goes and I may be free of it for several weeks. My medications are, Robaxin, Baclofen, Zofran, Lyrica, Diamox, and Toporol XL

OK, all disclaimers in place — I feel like I’m flying blind here. How’s your BP? Does it change when the headaches occur? Both Diamox and Toporol can lower your BP… Hmmm. It doesn’t sound exactly like a pressure headache, especially if it doesn’t travel down the base of your skull to your neck. Honestly, it could be almost anything — hormone fluctuations come to mind because we have “endocrinology gone wild”. Some blood work may be in order… Without seeing you, knowing your history, etc, I’m a bit at a loss here. Did you try mast cell meds (I’m not even sure if you have POTS, Hon). We may be pushing the internet beyond its capabilities… 🙁

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