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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Let's talk about Diamox!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Let's talk about Diamox! › Reply To: Let's talk about Diamox!

May 9, 2012 at 10:14 am #2136
ourfullhouse
Participant

Yes, saw it, and thank you! I have really, REALLY fought the acidity issue AND my potassium also went south about month 8 on Diamox. Could those RX potassium pills be any more huge? Ugh. Can’t wait to see part two of this! If there is something besides bicarb to help with this issue, that would be AWESOME! As it is, I am taking 12+ bicarb tablets a DAY and “only” two Diamox pills a day (one AM, one PM).

It was also good to hear someone say that when we sometimes think the Diamox is not working it probably isn’t the Diamox, it is the acidity. I have kind of gone round and round with this issue, trying different doses and then recently just stopped the Diamox altogether for about 6 days (trying to see how long it would take for my body to “notice” the Diamox wasn’t on board anymore, as far as symptoms, etc.). I was surprised I didn’t have a headache right away. But, on day 6 my world came crashing down and then I was BEHIND the problem(s) and my body was so ticked off and inflamed I had to go on prednisone for a few days. So, word to the wise, don’t go off it even if you don’t think it is helping!

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