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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: 1 point away from EDS at Genetics Appointment

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › 1 point away from EDS at Genetics Appointment › Reply To: 1 point away from EDS at Genetics Appointment

February 22, 2012 at 6:36 pm #1765
sarahdionna
Participant

The geneticist called me today and we talked some more. She said that she does believe that I have some form of hypermobility but she doesn’t know what to call it since my symptoms don’t fit perfectly into any known diagnostic criteria. With EDS, she feels like I’d be closest to type 3 but I don’t have any history of dislocations. Being thrown in the “Joint Hypermobility garbage can” is the only answer she can provide at this time. She said there are a lot of hypermobility and connective tissue disorders out there that don’t have names yet and she thinks I have one of those. She does think my POTS and GI mobility issues are from the connective tissue issues I have. One more piece added to the puzzle. Yay!

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