NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative? › Reply To: Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative?
Hi Dr. Diana! Thank you for the reply. Sorry it took so long to check in. I have not read your book, yet, but now that I know you have a book, it is on my list. Thank you for letting me know. I haven’t tried Diamox, but will look into that. I can’t usually tolerate any medications.
UPDATE: I went to the cardiologist, today. He barely looked over my paperwork, then came over, took my pulse, seated, and asked me to stand up, again. He then asked, “Have you ever heard of POTS?” I was stunned! I replied that that is what I think I have. He said he thinks I might have it, too.
Then, he pulled out the report from the ANS testing, and he said that they made a negative diagnosis on dysautonomia based on what my blood pressure was doing, but he sees that my heart rate WAS an issue during the test, and he noted that right there in his office, my heart went from 80bpm sitting to 115 standing, in just seconds after I stood up. He said that isn’t supposed to happen, and that my arrhythmias during the ANS testing, 6 weeks ago is also telling. We’re doing and echo-cardiogram and 24 hour heart monitor, next week. He is leaning toward POTS, though.
So, I may have my answer, soon, and then I will be able to get on with doing whatever treatments I need to do.
Oh yes, and he also suggested that I might want to look into Mast Cell Disorder. He said he had one other patient with POTS who got a lot better when she started to treat for Mast Cell Disorder.
This is all very new to me, so I have a lot to learn. Thank you for having this place to exchange information. It is invaluable!