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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative? › Reply To: Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative?

September 11, 2015 at 12:41 pm #5654
Dr. Diana
Keymaster

Hi FL, my ANS testing (except for the TTT) was also negative. That is how I knew I didn’t fall into their usual categories for autonomic dysfunction. Do you have a copy of the book? If so, you’ll know that years ago, I read two large textbooks on dysautonomia, but my kids and I did not fall into any of the categories discussed in the books. That is when I knew we were on our own in figuring this out — something (or many things) were getting missed. Starting at the beginning, you sound like you have many symptoms of high intracranial pressure. Have you been able to try Diamox to see if that gives you some benefit? 😉

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