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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: My story so far…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › My story so far… › Reply To: My story so far…

August 10, 2013 at 1:30 pm #4091
Vincent
Participant

I just realize that the Zyrtec drug is call reactine, it’s the brand name in Canada. I react badly to it last summer with again same usual tachycardia, urinary retention, migraine and nausea… The only one antihistaminic that I can tolerate is call Hydroxizyne or Vistoril or Atarax in Canada, an old antihistaminic who is sedating but I don’t use it often since it make me feel dizzy…its affecting some serotonin receptors as well and use sometimes for mild anxiety…but its too mild to help my anxiety even at high dose… I think the Reactine is a metabolite of the Hydroxizyne but don’t cross the blood barrier so less central nervous system side effects but again not on me, I have worse side effect from it than from the older Hydroxizyne…

Also in one of your video, you talk about magnesium. I want to point out that my Doc did try on me some IV magnesium treatments, thinking it will help with the pain and muscles weakness. Every time I had an IV treatment of magnesium I had a long lasting migraine of 3 days and more pain and more weakness. I have the same reaction from low dose of oral magnesium, I ordered one brand from the USA call natural calm, highly absorbable magnesium form, effervescent powder that you blend in a liquid…I had the worse migraine of my life after only 1 dose… So I guess I have enough magnesium in my body even if blood test for magnesium level are not accurate of the real level of magnesium in the body…my blood level is right in the middle range.

Sometimes I take 50mg of Potassium especially when I have muscles spasm and its seem to lessen the palpitation…my Doc told me to not take potassium supplement since you can easily overdose and it will lead to arrhytmia..but I find out that for me the potassium is better than the magnesium for the heart..don’t have migraine from potassium and my muscles spasm stop and less palpitation. I don’t use it often cause my blood level of potassium is in the mid range and don’t want to get it higher…

Well, sorry if I write long post here with a lot of informations, just want to be sure that I don’t forget anything…

Thanks again, Vincent

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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