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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Peg or pej tubes

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Peg or pej tubes › Reply To: Peg or pej tubes

September 4, 2013 at 7:54 pm #4267
Dr. Diana
Keymaster

Hello

I’m just writting this post as lately I have been loosing a lot of weight as my swallow has started to pack up on me and they think I have gi dysmotility and gastroparesis. I was wondering if any one else has a peg or pej tube and if it has helped x

Thanks in advance x

Hi Carrie, I know a lot of folks who use a peg or pej tube, but I’d love to see you avoid that if possible. Did you check out the treatment trial I’ll be starting for our gastroparesis/chronic constipation/delayed gastric emptying? I’d love, love, love to see you respond to this medication! 😉 I also wanted to mention that if you are having swallowing issues, some of us develop eosinophilic esophagitis. Did your docs check for that, perhaps? So sorry you’re going through this. 🙁 It sucks. Been there! Gastroparesis was one of my first symptoms, in fact. It is no fun, FOR SURE. Hang in, Hon… 🙂

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