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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: My story so far…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › My story so far… › Reply To: My story so far…

August 15, 2013 at 8:59 pm #4113
Vincent
Participant

I’m sorry you had to go to the ER. I hope you are feeling better. It sounds like you are having many difficulties. i am glad you have your family to help you And I am glad that you found this forum 🙂
MJ

Hey thanks!!! That’s ok, I just feel awful and can’t think it can be only anxiety related like most of cardiologists think! When you have an anxiety disorder, all the Doc blame anxiety for everything you have… Backpain is anxiety, jaw pain is anxiety, general weakness is anxiety… But it’s not true… I’m alive because my mom call the ambulance when I had my first intestinal obstruction while I was in the psychiatrist hospital as an inpatient and that the old PDoc keep saying it was all in my head and those nurse who was laughing at me, when I was in pain, throwing up every 30 seconds, unable to breath and almost dead in my bed!

Anyway yesterday at the ER they did their work, I go there cause of the tachycardia, chest pain, left arm numbness, lack of breath and dizziness, they did the tests they had to be done and see if I was having a heart attack or congestive heart failure, or a pulmonary disease… They wasn’t there to diagnostic me with pots or dysautonomia… That’s not their job… But I return home with no answer to my symptoms and that’s frustrating… Cause I continue to feel bad and have all those symptoms…

I fear that the new cardiologist will also blame anxiety… So no more test, will probably just change the beta blocker and nothing else… That’s hard to try to convince them that it’s not all in my head…

I understand that anxiety can create or mimic a lot of cardiovascular or other diseases symptoms, but not chronic symptoms for sure… I know my anxiety, I can see the difference between symptoms from a simple panic attack and symptoms who are not from anxiety…

So many things can’t be explain, the med sensitivity that I never had before, the tachycardia, general weakness, not able to take a shower or climb the stairs, dizziness, extreme fatigue, chronic headache… Name it… Too many symptoms who are not from my anxiety and that I don’t know the source…

All I can do is to sit on the couch all day long and feel sick and think about how many time I will stay in that state and how I will be able to recover…

Humm wow, just had a vertigo spell as I’m typing this message, I hate that feeling…

Well, thanks for your help, I appreciate it so much, take care, Vincent

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