I will see a new cardiologist in 2 weeks and don’t know what to ask to him, maybe you can help me on that?
I think I can answer the dysautonomia part of what you should be asking your cardiologist for. If there is anything else for your other issues, I do not know anything about it.
You should ask your cardiologist for a referral to an electrophysiologist. This is a cardiologist that specializes dysautonomia. The specialist will probably order full autonomic testing. If they know anything about EDS, they will also order head and neck MRIs.
I had full autonomic testing with the following:
1. Tilt table test with nitroglycerin provocation.
2. Catecholamine level determinations.
3. Intrinsic heart rate.
4. Beta adrenergic hypersensitivity.
5. Alpha-adrenergic activity and sensitivity.