Hi Dr.Diana, thanks for you answer and support! I appreciate it so much. You are the first person to tell me that all my symptoms are not all anxiety related and its helping me to feel more like a normal person, normal but ill for a unknow reason…
First, I live in Quebec City in Canada, here the health system is public, so we don’t pay to see specialists or have tests done. The main problem is that since we don’t pay, we have to wait a longggggg time before seeing a Doc. If you are lucky and can see a cardiologist, he will not order expensive tests if you don’t look very ill…and if th cardiologist order some tests, they will be the regular ones like the hter monitor, EKG, stress test with the echocardiography (can’t walk on the treadmill anymore), nuclear tests like a persantin mibi test, blood pressure monitoring…
I ask to have a tilt table test and the answer I get from my cardiologist is that they don’t have a tilt table in the city where I live. I will have to travel outside the province of the Quebec to have the test done and sadly I can’t travel… Why I can’t travel? Well I can’t cause just being in a car make me feel sick and trigger panic attacks even just as a passenger!!! My anxiety is so bad that I’m disable from work for life…
I lost all that weight before I had the intestinal obstructions. I had and still have so much pain in my intestine that I wasn’t able to eat normally and that’s why I lost all that weight. I stayed 1 month at the hospital after the last surgery I had for the obstruction and had IV feeding with a pic line for 2 weeks and then they start feeding me with the tube by-passing the stomach to make sure I absorb everything. Even with the tube feeding I never was able to gain weight after those 2 surgeries. Right now, my weight is 160 pounds… I have apparently IBS with the big C, the last gastro Doc I saw did the usual colonoscopy and gastroscopy test as well as blood tests for gluten and other foods allergies and she didn’t find anything wrong so she told me I had IBS with C… I only have a tense pelvic floor muscle and cant have a normal bowel movement without using 10 glucerin suppositories. The intestine symptoms are very bad recently,
And I start having the same kind of pain I had before the intestinal obstructions. I’m on a liquid diet low in fiber to prevent futur obstructions but its not helping me and I’m bloated and in pain all the time. My Gastro Doc said that I may need to have another surgery to have a jejunostomy tube place into the small intestine to feed me and gain weight. She think I feel weak and can’t exercise or just do normal physical activity like taking a shower cause I lost all my muscles mass and don’t eat enough.
Of course, I have blood tests regularly for all the vitamins and minerals, thyroid, cholesterol, inflammation. Everything is normal, I have high B12 and folic acid level in my blood who is not usual but the Doc told me it was normal. No anemia, no thyroid problem as well. I had a 24 h urinary test done for the cortisol, adrenaline, noradrenaline, dopamine levels, it was back in 2010 when my anxiety was better and my physical state was also better and my cortisol level was low, adrenaline and noradrenaline was borderline low and dopamine level was normal!!! It was a big surprise since the Doc was thinking that the adrenalin and noradrenaline will be sky high but no.
I don’t understand why my ejection fraction is so low, I don’t have heart failure or enlarged heart. My cardiologist say that the ejection fraction can go up and down, and he say to not worry. But again no other test was done. I tend to have low systolic blood pressure, before I had high blood pressure. I don’t know if its the weight that I lost who did that but I went from 450 to 190 pounds and didn’t had low blood pressure.
I try so many meds, I try the florinef who bring high blood pressure and painful migraine and more panic attacks. I try the clonidine and almost faint from a low 0.05 mg dose. I try all the beta blocker and find out that I can tolerate only low dose of propranolol, the newer ones like the bystolic are the worse for me. I always had allergies problem, as a kid I had bad allergie at summer time, as an adult it’s kinda not that bad, still have allergies but don’t need antihistamine med to control the symptoms… I’m sensitive to antihistaminic meds, had a bad reaction to IV infusion of Gravol and Benadryl at the hospital, also the newer antihistaminic make my heart race and pounding. Right now I take some Prevacid for my stomach pain but its not working anymore. I was on the Zantac years ago before the emergence of newer PPI meds like nexium, Prevacid. Never had problem with it in the past, I have some Zantac pills at home, I should try it today and see how I react? I also have some peptacid that I can try if you think it can help? Witch one is better?
I will see a new cardiologist in 2 weeks and don’t know what to ask to him, maybe you can help me on that? I’m sure he will look at my medical folder and say that my last holter monitor from June is good and same for the blood pressure monitoring, he will probably not want to test me again to see if my ejection fraction is lower than last year but I will ask him. Did you know other tests that can replace the tilt table? It can help me having a real diagnostic and not just having a idiopathic diagnostic of dysautonomia.
Also for the med sensitivity, is it normal? I was used to take 40 mg of Paxil with no side effects, and did try all the other antidepressants at normal dose with no side effect at all, but now I react badly to all the meds… Even react to Ibuprofen, I can’t take it anymore cause my heart rate to crazy, it was the only one effective med for my chronic headache…
Thanks again, Vincent