It’s me again, I forget some little informations.
I saw 3 neurologist since 2010 for my chronic headache. I had a MRI done of my brain with contrast agent and it was normal. I was put on low dose of an older antidepressant call elavil, but I didn’t take it for more than 1 night cause I had worse tachycardia and orthostaric hypotension. I learn later that the elavil is a member of the TCA antidepressant family, a dirty antidepressant who can affect the heart rhythm and lead to arrhytmia as well as orthostaric hypotension. Anyway, I saw another neurologist who did absolutely nothing, he didn’t wanted to make a new MRI of my brain and said it was chronic headache from anxiety only. I saw another one who do a MRI of my jaw, he said it was normal but he look at my teeth and say I have TMJ and will need a night guard for my mouth to wear at night… I get one from my dentist and it didn’t help me at all and the chronic headache he still there. I return see him and he I do a neve block with cortisone injections in the Arnold nerve behind my head. I had a major spell of anxiety for 2 weeks cause of the cortisone injections! I react badly to cortisone, make my heart symptoms worse and trigger big panic attacks as well… Had to take some cortisone pills before a ct scan of the abdomen and pelvic and was sick for 3 days just from pills of cortisone… I’m also very sensitive to adrenaline, last time I to to the dentist that have some cavities repair, she inject a local anasthesic who contain low dose of adrenaline and my heart start racing to 140 for 2 hours in a row, the dentist had to stop and put some ice pads on my head and let me recover in the office… I return some days later and had local anasthesic injections without adrenaline and didn’t had the fast heart rate but felt everything cause the anasthesic didn’t work on me, I had 10 injections and it didn’t work! My dentist say I’m a medical mystery! She did say that anxiety can block the anasthesic effect… So I guess she said to herself that I was just a crazy anxious guy…
My family doctor, the one I see every 2 months say that I MAY have chronic fatigue syndrome and fibromyalgia but again no test to confirm the diagnostic. He explain that chronic anxiety like mine lead to autonomic nervous system failure and can give those diseases… He absolutely want that I start taking an antidepressant again, he said that it suppress the overactive sympathetic nervous system and help the cardiovascular symptoms, but the main problem is that I react badly to 1 mg of Paxil right now, I did try at least 20 times to start taking the Paxil but never was able to get higher than 1 mg, more than 1 mg is enough to bring me to the ER with long lasting supraventricular tachycardia. I did try the lexapro and had the same reaction and had to go to the ER… It’s so weird cause like I was saying, I took the Paxil and even the lexapro for years at regular dose with no side effects, only weight gain… I was on a maintenance dose of Paxil for years to control the panic disorder and it always work and was free of panic and anxiety for many years…
I had a PDoc before, I saw him for 3 years…. In 2011, when I start having intestinal pain and more cardiovascular symptoms, he deny the fact that I was sick for real and give to me a diagnosic of somatic disorder as well as personality disorder of passive aggressive!!! He did see me lost more than 60 pounds in less than 4 months before the Intstinal obstructions happen and he was saying that it was all somatic, all in my head, not real… When the Intstinal obstructions occur, I was in the psychiatrict hospital for the severe anxiety and the day I had the first obstruction they did nothing, I was in pain in my room, throwing up every 2 minutes, was so weak that I was unable to walk, the PDoc there was saying that it was all in my head and the nurses there was joking about me and say things like you eat too much cake and that’s why you are sick!!!! They leave me in my hospital room alone for 1 night, was sick as hell, they didn’t help me or give some pain meds… Was told to stay calm and stop crying but I was in agony!!! I had to call my mom early in the morning and she come see me and she call herself the ambulance and she get me out of that psychiatrict hospital! When I arrive at the other hospital, I had a pounch of 5 liters of bile in my abdomen who was about to explode, 2 hours later and I will be dead like my gastro Doc said!!! Let me tell you that I never return to see that PDoc!!!! I fill a complaint about the fact that the PDoc and the nurses did nothing to help me but like I was saying we live in a public health system, so the PDoc and nurses didn’t had some kind of punishment for the bad decisions!!!
The main problem is that now in all my medical folders in every hospital where to in my city, they have a copy of the medical report form the psychiatrict hospital, so when I see a cardiologist for example, he look at my medical folder first and see that I have anxiety disorder so all the Doc tend to blame anxiety for all my symptoms and that’s why it’s hard to ask to have other tests done on me for my heart.
I saw a new PDoc recently who did remove the personality disorder from my diagnostic, he also remove the somatic disorder but my real diagnostic is now severe anxiety disorder, panic disorder with agoraphobia, social phobia, general anxiety, post traumatic disorder… The new PDoc told me also that I need to return on an antidepressant like the Paxil to stabilize my nervous system. He also said that I need to stop smoking cause its increasing the activity of th sympathetic nervous system… He said that my anxiety is so bad, he never see that in 30 years of practice!
Anyway, it’s hard to separate the anxiety related symptoms and the real diseases symptoms.
Well thanks again for your help, Vincent