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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: My story so far…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › My story so far… › Reply To: My story so far…

August 10, 2013 at 12:36 am #4085
Dr. Diana
Keymaster

Hi Vincent, Welcome to the forum — we’re so glad you’re here! This is a lot to cover (none of us are “easy”, believe me), but first, I strongly do not believe your problems are caused by anxiety. Weight loss like what you recently experienced is not a result of anxiety. I think you’re instincts are right to look for a tilt table test and have your catecholamines checked for ‘hyperadrenergic POTS’ while you’re at it. Obviously, you and your doctors don’t want to go down the road of idiopathic dysautonomia, if indeed you have a medical cause which needs to be found first. So I’m sure they’ll want to rule out a few things, as they did with me: carcinoid cancer (easy urine test for that), other cancers, blood clots in the venous sinuses draining the brain, etc. Assuming those all check out fine, and the doctors can find NO REASON for your symptoms, then you’re with us! 😉 We’ll talk you through it! Have you tried anitihistamines yet? As silly as it seems, many of us have problems with histamine. In our family, a double dose of Zyrtec/Zantac for a couple of weeks made a huge difference for us. Then we were able to drop our dose down. We take Zyrtec a few evenings a week, and Zantac once a week or so. Since you’ve have stomach surgery, it is VERY important to watch for B12 deficiencies. Do you get B12 shots? Why don’t we start with some of these easy things and see how you do? I’m hoping others will chime in here, and get you started… Hang in, my friend. You are not alone in this journey. TRUST ME. We just have to tease this apart — and it can be tricky, but not impossible. You may qualify for a couple of treatment trials I’ll have coming up soon, too! 😉

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