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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Could someone please explain this upright MRI finding

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Could someone please explain this upright MRI finding › Reply To: Could someone please explain this upright MRI finding

October 21, 2015 at 8:45 am #5668
Dr. Diana
Keymaster

Hi there! Your doctor should be able to show you your images to explain this — it would be great to see, I think. What it means (basically) is that you *almost* have a Chiari-type presentation, with the back part of your brain sort of hovering over the spot where your CSF normally drains into your spinal column. Sometimes this can cause Chiari symptoms, sometimes people are never symptomatic even when that part of the brain dips so far down that the patients have true Chiari. Knowing this, I think it is critical to rule out high intracranial pressure, which can cause/exacerbate this presentation (as can tethered cord). This is one thing that my kids are I presented with, yet were able to avoid Chiari surgery, brain shunts and neck fusions by reducing our intracranial pressure. Information is power, right? Big hug to you…

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