NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Connective Tissues (possible EDS), hormones? › Reply To: Connective Tissues (possible EDS), hormones?
Hello Stray Tulip
Your story sounds very similar to mine except the trigger was hitting my head on a door whereas yours was an eating disorder. Neurosurgeons and other Consultants have been unable to explain the amount of pain I am in and it was only after having an upright scan that Chiari was recognised as well as an injury to one of the vertebra in my neck. Now, like you, I am living with pain constantly and have gone from one doctor to another without finding an answer.
Last week I saw a Neurologist who asked lots of questions about my family and examined me thoroughly. He suspects I have EDS and has asked for autonomic testing. I didn’t realise I was hypermobile until he asked me to do a few things and said that most people are not that flexible.
I suspected that a dental implant I had four months before hitting my head may have caused a weakness in my neck and a blood test showed that I was allergic to titanium and had metal toxicity. Unfortunately, I can’t have it removed yet but you could see an allergy doctor to see if anything is causing a problem. I think people with EDS are extra-sensitive.
Dr Diana’s book would help you understand more about EDS and what you can do to help yourself without having Chiari surgery. I recognised so many symptoms that she describes and think that I have probably always had this syndrome without any real negative effects until it was triggered by trauma.
Best wishes and hope you find some answers.