My muscle biopsy was also to look for mito! And, was also negative. So many ups and downs in this journey.
My neuro wanted me to be seen at the Neuromuscular Disease Center in Saint Louis to try to figure out what my biopsy results “meant” and to maybe, MAYBE, get DX (but don’t get your hopes up on that… she said most people don’t get a DX, but they do learn more from going to see these specialist). Well, I live on the West Coast and that was just too far to go with so little possible outcome from the adventure and expense.
I still don’t know what it means or how it figures in with EDS/POTS/Masto/CCSVI.