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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: electric shock feeling?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › electric shock feeling? › Reply To: electric shock feeling?

July 19, 2012 at 8:06 pm #2644
Barbara
Participant

I would love more information. My 12 year old son calls them zaps… he gets them often and it has been happening more often. He also a lot of issues with pain in his legs. Anyone have a way to deal with this he is alredy starting to show depression from having to deal with pain at a young age.

Hi Berluv,
Here’s my way of dealing with leg pains:

The severe excrutiating pain I used to get when my leg went purple, was very difficult to deal with. The only solution was to sit down and if that didn’t work, to lay down and if that didn’t work, to CRY!! The solpadeine helped take the edge off but that’s all. I did find that if I had a daily bacon sandwich, it wasn’t as bad, maybe the salt from the bacon expanded my blood volume, or maybe it was the growth hormone that it’s pumped with, who knows!

I also have to watch the position of my legs, as raising them to the height of my bottom causes cramp, so I even have to sleep with them at least 6″ lower than the level of my bottom.

If I’m sitting still for any length of time, I have to wiggle or judder my legs to keep the pain away, I get a sort of warning feeling, an ‘aura’ if you like, that the pain’s going to start if I don’t improve my leg circulation by juddering my leg. I used to use a massage mat, that covered a full recliner chair from top to bottom and if I sat on that and switched on the lower half, that helped alleviate this warning feeling and therefore avert the full pain attack.

I have my lower legs massaged twice a week and this helps a lot too. I think it get’s rid of the lactic-acid build-up (I could probably do with having this done every day!)

Coldness, worsens the pain, so I wear support hose, legwarmers, long trousers (all year round!) and always shoes or slippers (never bear-footed, especially on a cold floor, that’s asking for trouble!)

The 24/7 support hose helps lessen odema and helps circulation too.
Hope some of this helps
Regards
Barbara
(UK)
———————————————————————————————-
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium) & Vitamin (C,D,B3,B12) Deficiencies!

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