Dear Whatsreallygoingon,
Curious, did you have a muscle biopsy that gave you the small fiber neuropathy DX? I had one about 18 months ago, in this journey of getting DX’ed. Mine was a surgical biopsy as they wanted a pretty large piece of leg muscle to test. My results were smallness of type 1 fibers and increase in internal nuclei. My neurologist also writes it up as “myopathy with central nuclei”. I also have abnormal EMG and nerve conduction studies.
I haven’t seen anyone else on this forum mention having this DX or these kinds of testing and wondering if people just haven’t mentioned it, or haven’t had the kinds of symptoms we have had that led to this line of testing?
I rarely get the kinds of shocks you talk about, but have a friend who is just like us here (wish she would join in here!) and she gets the shocks very badly. She also has had a muscle biopsy (though a simple punch one) and the abnormal EMG/NCS.
I don’t know if that helps or not….;)