Oh wow…good that you got it on video! So what was happening for you? Was it Hydrocephalous related? Or did it have to do with your angioplasty? Was Hydrocephalous causing POTS for you? BTW, I could TOTALLY hear the squishy noise in your ears!!!
I don’t get squishy ear sounds, but I ALWAYS have ‘crackling’ at base of skull/ neck when I move my head – eg tilt back, turn to side; anything. DO YOU THINK MY EPISODE WAS HYDROCEPHALOUS?
I have high BP with POTS, rather than low – but I do get low too, and I know you have the high BP if I remember correctly, and I am just wondering if the high BP and pots could be caused by hydrocephalus?
I want to come to the states to get an upright MRI – my horizontal MRI doesn’t show much, and I am pretty sure about Hydrocephalous, and very sure of CCI. Should I get an upright MRA as well? Where should I go?