• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Do EDS and Marfan's effect the eye in the same way?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Do EDS and Marfan's effect the eye in the same way? › Reply To: Do EDS and Marfan's effect the eye in the same way?

September 25, 2012 at 12:23 am #2962
Wacky?isa
Participant

Hi, thanks for the reply. With all the stress I forgot to add more info.
The procedure I need is a shunt. What type has yet to be determined but thanks to 300mg of Naptazane a day I can put it off for some time.
My trab has failed post cataract surgery so this is my best option.
As an aside I want to put it off for as long as possible because if the shunt does enough I will no longer have an ‘easy’ reason to be on the Neptazane.
I got a 2nd opinion with Dr Robert C Urban who says that not enough is known at this point to know if his experience with people with Marfan’s or my HMO approved ophthalmologist’s experience with people with Marfan’s will translate into my operation. However, he’s fairly confident that the shunt can be installed when the time comes.
The information on limiting scarring should be helpful. Although I’ve had remarkably few operations for someone with Congenital Glaucoma (7) my scar tissue may be vecoming problematic in and of itself.
No matter what, I’ll get through this. As a kid I didn’t expect to be able to see into my 30’s so the years past 30 have been a bonus.
Lisa

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020