Hi, thanks for the reply. With all the stress I forgot to add more info.
The procedure I need is a shunt. What type has yet to be determined but thanks to 300mg of Naptazane a day I can put it off for some time.
My trab has failed post cataract surgery so this is my best option.
As an aside I want to put it off for as long as possible because if the shunt does enough I will no longer have an ‘easy’ reason to be on the Neptazane.
I got a 2nd opinion with Dr Robert C Urban who says that not enough is known at this point to know if his experience with people with Marfan’s or my HMO approved ophthalmologist’s experience with people with Marfan’s will translate into my operation. However, he’s fairly confident that the shunt can be installed when the time comes.
The information on limiting scarring should be helpful. Although I’ve had remarkably few operations for someone with Congenital Glaucoma (7) my scar tissue may be vecoming problematic in and of itself.
No matter what, I’ll get through this. As a kid I didn’t expect to be able to see into my 30’s so the years past 30 have been a bonus.
Lisa