NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Do EDS and Marfan's effect the eye in the same way? › Reply To: Do EDS and Marfan's effect the eye in the same way?
To simplify a long convoluted story as much as I can…
If a glaucoma specalist has experience operating on people with Marfan’s will this translate to a patient with EDS?
Hi Lisa, I wonder what type of surgery you are referring to? Most Marfans specialists are used to subluxated lenses — something us “regular” EDSers don’t tend to get. Depending on the surgery (for glaucoma, I presume? is it a trabeculectomy?), can you mention to them that they may want to consider mitomycin C to prevent too much scarring (common in many of us). And of course, please tell them we take longer to heal. Oh, Heavens, don’t forget that WE NEED MORE ANESTHESIA. 🙂 Lots. Are you doing OK, Hon? 🙂 Diana
That’s interesting. I am hypersensitive to all drugs and need so much less than normal. If I have a normal amount of anesthesia they have a hard time waking me up.