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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Do EDS and Marfan's effect the eye in the same way?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Do EDS and Marfan's effect the eye in the same way? › Reply To: Do EDS and Marfan's effect the eye in the same way?

March 2, 2013 at 8:18 pm #3517
Anne
Participant

Hi,
To simplify a long convoluted story as much as I can…
If a glaucoma specalist has experience operating on people with Marfan’s will this translate to a patient with EDS?
Thanks,
Lisa

Hi Lisa, I wonder what type of surgery you are referring to? Most Marfans specialists are used to subluxated lenses — something us “regular” EDSers don’t tend to get. Depending on the surgery (for glaucoma, I presume? is it a trabeculectomy?), can you mention to them that they may want to consider mitomycin C to prevent too much scarring (common in many of us). And of course, please tell them we take longer to heal. Oh, Heavens, don’t forget that WE NEED MORE ANESTHESIA. 🙂 Lots. Are you doing OK, Hon? 🙂 Diana

That’s interesting. I am hypersensitive to all drugs and need so much less than normal. If I have a normal amount of anesthesia they have a hard time waking me up.