I did watch the video. I relate to it so much. It does come in waves and leaves as quickly as it starts. The problem is when it comes and I am already up against a struggle that is beyond my ability to control it drains away what little fight I have left. It comes when things are looking up and still feel that way from time to time. Its easier to shrug off when things are going better.
My experience with doctors and different hospitals is I/we are just to complex to try and treat and would be happier if we left their practice, either naturally or unnaturally. I can honestly say there is no resistance here locally if you chose to opt out of this life because it gets to be too much. I almost would say it is encouraged.
I have a suggestion for you, Robert, that really helped me. You’ve experienced this coming in waves, right? I had to make an agreement with myself that when I was experiencing it, I would sleep, listen to comforting music, take Benadryl to help me sleep, basically do what I could do until it passed. It always passed. I had to reassure myself every time it hit, that it would pass, just as it always did before. It reminds me of when I used to jog — I agreed with myself to never stop running if I felt like I needed to stop, if I was running up-hill. I promised myself to wait until I was running down-hill. THEN, if I still felt like I needed to stop, then I likely needed to stop! Of course, only rarely did I need to stop then! If you can accept that these waves will happen and know you will gut them out — they WILL pass. When we get on the proper meds, we will stop these horrible waves, OK? Meanwhile, get out those water wings so you don’t go under! I HAD to have a relaxation CD and a sleeping pill or Benadryl to just gut it out. It worked. Whatever chemical was hitting my brain basically “washed out” while I was sleeping. Understand that if doctors have patients with conditions that they have no idea how to treat, SURE, they’d feel some relief if that patient’s name wasn’t on their schedule! That’s only human. I think most docs want to help, but they don’t know how. This is why we have research and clinical trials. I am working as hard as I can to pull this together, so we can start proper treatment. It will all make sense, then, and doctors won’t dread seeing us come into their offices! Hang in my friend…