Hi Robert,
I saw the other day that you could buy diamox off the internet. I just can’t remember the site right now. It was one where you could also buy ketotifen. I think it was a canadian one- it maybe that you need a drs prescription though. Its terrible how you’ve been treated. We have a lovely doctor who will try anything as long as he can prescribe it and if its specialist only we can get him to write a script and pay out of pocket for the item, just to try it. We couldn’t be luckier.
If we’ve got heart rates changing like that , our brain chemistry is bound to be screwed up by it all. All at once the body is asking for adrenalin, then its saying “no, no!”. What does adrenalin do – it makes you feel anxious. All this gets delayed and is cumulative in POTs so its no wonder we get so screwed up and are interpreted as anxious. Anxiety too will effectively feed this loop.
When I get the waves of depression I too lay down and I have a playlist of Desert Island Discs. This is a radio show (on itunes BBC, archived right back to the 1960s) where famous authors , actors, comedians who-ever are interviewed. For some reason listening to other peoples stories I find really comforting. Just a thought.
best Jill