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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Developing POTS? What's up with this?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Developing POTS? What's up with this? › Reply To: Developing POTS? What's up with this?

March 23, 2013 at 11:58 pm #3558
capri
Participant

That happens to me. Some days are fairly normal (no faints) just nausea, pains, fatigue, etc., but on some days, something will “trigger” a sudden drop in my BP and then comes the syncope, tachycardia and fainting. Sometimes I make it to a soft surface to fall or get horizontal on and sometimes I don’t and I get banged up. I’ve been able to correlate the episodes with times when I was having a good day but did too much activity (because I was feeling good,) there are the times when I had been bending, stooping and reaching a lot, gardening, standing in hot weather, or overheating myself within my A/C home, standing in line for the public restrooms at a large event, after taking a shower, at the grocery store, standing while rolling my hair or putting on makeup. 3 times I was sitting on the toilet coping with IBS cramping. Which makes me wonder, Is true POTS an EVERYTIME you rise illness? Something a TTT can markedly reproduce? Maybe I have a remitting/recurring variety. I think I need a heart rate monitor.

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