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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Shoulder — fibrotic bands?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Orthopedic/Joint › Shoulder — fibrotic bands? › Reply To: Shoulder — fibrotic bands?

November 13, 2012 at 8:31 pm #3127
Anne
Participant

Hello, my friends! Is anyone out there developing shoulder problems? Anything from thoracic outlet syndrome (TOS), to “frozen shoulder”, to deltoid contractures, to “fibrotic bands”? I believe that is what is happening to mine, and I’m trying to decide if I should have the bands cut or not… Yikes. It looks like this occurs secondary to chronic inflammation (yup, that would be us!), if not due to trauma. Does anyone have a GREAT orthopedic surgeon, or any experience with fibrosis of the shoulder? It looks like I have a small rotator cuff tear, too, but I think it is secondary to the fibrotic contracture (I’m guessing). I believe that many of us are prone to developing fibrosis of inflamed muscles. Anyone experiencing this? Big hug, Diana

Absolutely…I’ve always had neck and back pain but now in the last 5 yrs. I’ve had shoulder pain into the deltoids and teres muscles and deep in the joints. 5 yrs. ago it was my right shoulder and it took about 3 yrs. to heal. Now it’s my left shoulder and it feels worse than the right, like a tear. Nothing helps. My calves feel similar. I feel like my muscles are ‘drying up’. When I make a fist and then let it go, my fingers hold the shape of the fist. If I flex my toes hard, they will cramp. My back has been seizing top to bottom about once a week.

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