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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Suicidal thoughts and depression — the new vid is out — What are your thoughts?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Suicidal thoughts and depression — the new vid is out — What are your thoughts? › Reply To: Suicidal thoughts and depression — the new vid is out — What are your thoughts?

November 19, 2012 at 9:17 pm #3153
Barbara
Participant

Crikey stretchy silver – what a terrible place to be and I don’t just mean in the literal sense but with regard to the progression of treatment (or mis-treatment). Although I haven’t had such a terrifying experience (because I can imagine how it must have been, by how you describe it, being locked up) but I have had a pulmonary embolism which drastically affects your breathing, so from that experience I can empathise with how you must have felt.

It’s bad enough no-one taking you seriously whilst suffering from all this, without them also trying to rob you of your integrity and dignity. In fact, one of my son’s nicknames for me is ‘in-valid’ because of the way I’ve been disbelieved and treated with disdain by the NHS.

I do know what you mean regarding NHS treatment, I too am from the UK and have had to pay several private hospitals and institutes for private testing (indeed I’ve had to remortgage my house to pay for it all – I stopped counting at £40,000, it got too depressing!)
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

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