I will check it out. Something that has been really acting up lately is external pressure to the knee shoulder and finger joints causing shooting pain. Like crossing my leg moving it in the wrong direction, shoulder picking things up. Trimming my nails or writing. Also I’m experiencing my first bout of insomnia. About 11 he’s of sleep since last Tuesday. Surprised I am not so much tired as hurting and exhausted but not so much sleepy. Surprisingly feel ten times worse after any sleep than before. Then after several hours get back to the normal level of discomfort.
Just wondering if it is tasks that involve looking down (head in flexion) that worsen your symptoms, as I found this position exacerbates things. Have you ever had a head/neck MRI scan ?
Also, regarding the ‘feeling worse when I wake up’ situation, I had 5 years of sleeping problems waking up every 2-3 hours at first with tingling, then numbness, then paralysis, developing into excrutating pain, waking up gasping, cold but wet through with sweat, and/or feeling like I had the worst hangover – when I don’t drink (because I’m alcohol intolerant), which took several hours to dissipate, once I was up and about. This was all almost cured by wearing a philadelphia collar on a night (I have to wear it 24/7).
What triggered your symptoms originally, can you link it to anything ?
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!