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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox – I wish I'd tried it for longer …

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox – I wish I'd tried it for longer … › Reply To: Diamox – I wish I'd tried it for longer …

April 29, 2017 at 1:31 pm #6155
Dr. Diana
Keymaster

Hi Bombsh3ll, I’m sorry to hear about your trials and tribulations trying to figure out if Diamox is right for you! I will tell you that it is critical to differentiate between normal (and temporary) side effects of Diamox (such as numbness and tingling) from adverse effects. Most people do experience numbness and tingling — but this STOPS by about the two week mark. Of course, it is critical to monitor your CO2 levels, so you don’t miss out on the good effects while you gut through the side effects! Topamax is commonly used for migraines, which can easily be confused with high intracranial pressure headaches, but it does a fairly poor job of lowering intracranial pressure (the amount of carbonic anhydrase inhibitor effect is fairly small). There are few better tests of high intracranial pressure treatment response than Diamox, I’m afraid. I hope, hope, hope you can get the answers you need,
though, my friend! 🙂

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