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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: A little help or thoughts

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › A little help or thoughts › Reply To: A little help or thoughts

June 16, 2017 at 3:58 pm #6183
gentle_hugs
Participant

Oh wow you have really been through the ringer. I am so, so sorry about your suffering. My heart goes out to you!

When you said vertigo, I kind of though ME/CSF. There’s an author named Laura Hillenbrand who wrote an exquisite essay about her journey into CSF hell that discussed vertigo as a primary symptom. Anyway, the reason I mention this is because an emerging treatment for that illness is Low Dose Naltrexone. It prompts your body to produce natural endorphins, which modulate the immune system. I am on this to control the pain and inflammation that comes with EDS. I can’t describe the degree to which that drug has helped me. My inflammation is gone and my pain is gone. This is after a lifetime of terrible pain like you described: neck pain, headaches, and also burning inflammation throughout my joints and muscles.

Hugs.

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