NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Optic Neuritis and EDS? › Reply To: Optic Neuritis and EDS?
I’m so, so sorry to hear the new development. 🙁 I can only imagine how overwhelming the news must be. I did want to mention that you are not alone is having an overlapping presentation. I recognized how I always found hypermobiles/EDS patients when I went to MS conferences (although most were undiagnosed concerning hypermobility). A couple of commonalities we identified were that both EDS/POTS and MS patients tended to develop left ventricular diastolic dysfunction and high intracranial pressure. The MS patients we tested had dramatic and positive responses to Diamox to relieve high intracranial pressure. Sleep and headaches were the first things to respond. Research posters are here: http://www.potscare.com/research/ I hope the steroids knock it all down for you and you and your doctors can get a clearer picture of what is going on. Hang in, my friend.