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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Optic Neuritis and EDS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Optic Neuritis and EDS? › Reply To: Optic Neuritis and EDS?

December 19, 2015 at 10:18 am #5762
Dr. Diana
Keymaster

I’m so, so sorry to hear the new development. 🙁 I can only imagine how overwhelming the news must be. I did want to mention that you are not alone is having an overlapping presentation. I recognized how I always found hypermobiles/EDS patients when I went to MS conferences (although most were undiagnosed concerning hypermobility). A couple of commonalities we identified were that both EDS/POTS and MS patients tended to develop left ventricular diastolic dysfunction and high intracranial pressure. The MS patients we tested had dramatic and positive responses to Diamox to relieve high intracranial pressure. Sleep and headaches were the first things to respond. Research posters are here: http://www.potscare.com/research/ I hope the steroids knock it all down for you and you and your doctors can get a clearer picture of what is going on. Hang in, my friend.

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