Thanks for the reply.
Having had an emergency neuro-opthalmology appointment, they confirmed it as optic-neuritis, and have put me on 6 weeks pf extremely high steroids as the vision had gotten significantly worse. I am awaiting an MRI scan now, and just keeping my fingers crossed that I haven’t been unlucky enough to develop MS on top of EDS 🙁
Reacting very badly to the steroids – pain and POTS have majorly flared, to the point where my GP is referring me to an occupational therapist for a walking aid, which at the age of 27 is pretty hard to swallow!
Hoping once the steroids are over, Il perk up a bit, and that the results will be clear.