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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Optic Neuritis and EDS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Optic Neuritis and EDS? › Reply To: Optic Neuritis and EDS?

December 19, 2015 at 7:51 am #5761
shmeepfairy
Participant

Hello,

Thanks for the reply.

Having had an emergency neuro-opthalmology appointment, they confirmed it as optic-neuritis, and have put me on 6 weeks pf extremely high steroids as the vision had gotten significantly worse. I am awaiting an MRI scan now, and just keeping my fingers crossed that I haven’t been unlucky enough to develop MS on top of EDS 🙁

Reacting very badly to the steroids – pain and POTS have majorly flared, to the point where my GP is referring me to an occupational therapist for a walking aid, which at the age of 27 is pretty hard to swallow!

Hoping once the steroids are over, Il perk up a bit, and that the results will be clear.

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