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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mast Cell Questions (w/ EDS, Chiari, IH, etc)

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Mast Cell Questions (w/ EDS, Chiari, IH, etc) › Reply To: Mast Cell Questions (w/ EDS, Chiari, IH, etc)

June 2, 2012 at 6:44 am #2314
SweetFeather
Participant

Rae, have you seen the pre-surgery recommendations on the Mastocytosis Society’s website? They have a list of medicines which are known mast cell degranulators to avoid and a protocol to follow pre-op to help prepare for surgery. You can print that out and discuss it at your pre-op appointment!

Have you looked into histamine foods aggravating your rashes? Histamine seems to have a “barrel effect” so you need to look at individual foods AND the total amounts of histamines. Google: Chronic Urticaria, Histamine Intolerance, DAO (diaminase oxide) for relevant info.

PLUS! Be sure you watch Dr. Diana’s video on Histamine! Right here! Oh… and be sure you ask for a low histamine diet in the hospital! Best of luck to you with your surgery.
Take care, SweetFeather

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