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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mast Cell Questions (w/ EDS, Chiari, IH, etc)

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Mast Cell Questions (w/ EDS, Chiari, IH, etc) › Reply To: Mast Cell Questions (w/ EDS, Chiari, IH, etc)

February 21, 2013 at 1:11 pm #3492
Deb
Participant

I’m a little different than most I’ve talked to, maybe because of my CYP liver enzymes. I recently had 4 of them checked and my CYP2C9 and 2C19 are both faulty as well as another one that is VOK gene. I wonder if that is why I am unable to process quercetin and most other antioxidants.
I am now on a low-phenol, low-histamine, low-sulfur diet that eliminates most of the foods I used to eat. If I take something like vitamin c or quercetin, there is no relief for hours of writhing pain. I went to the hospital crying in pain that lasted about 4 hours after taking quercetin last year.
I really miss the foods from the cabbage family which are high in sulphur. I didn’t know that it was also high in quercetin. I’m not sure which is more of a problem now.

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