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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Does this sound like/look like Intracranial Hypertension? MRI images included.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Does this sound like/look like Intracranial Hypertension? MRI images included. › Reply To: Does this sound like/look like Intracranial Hypertension? MRI images included.

January 15, 2015 at 11:13 pm #5234
TBird
Participant

You are a rock star Barbara!

Thank you so much. Now I have some really specific areas to point to when I ask about my MRI. I have found that I only get real answers from docs if I search out the specialists and spoon feed them specific information based on my research and assumptions. Then they are able to come to the conclusions that I suspect. 🙂 I only was focused on the tonsil herniation, I had no idea about the other stuff. I really appreciate your food for thought.

Frankincense is going ok. The headache did come back in the morning. Apparently Gliacin can take 3-5 weeks to notice a difference, 3 months for optimal help. Maybe there was a placebo effect, or maybe my body responded because it was new, but then the next time not so dramatic? Not sure. But apparently there are a lot of other positive effects- antibacterial/antifungal, helps gastrointestinal… maybe I can “kill several birds” with that.

Elevating the bed has helped. No “sleep paralysis” after having it a couple times at night a few days in a row.

Hoping I am headed in the right direction. Thanks all for your help. 🙂

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