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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Tips for Neptazane nausea and taste dysfunction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Tips for Neptazane nausea and taste dysfunction › Reply To: Tips for Neptazane nausea and taste dysfunction

July 10, 2012 at 2:28 pm #2566
Wacky?isa
Participant

Hi,
Well, I oopsed my dose got tripled, not doubled.
I do seem to have some mast cell issues but can’t find a doc to specifically address them. Claritin, Pepsid, and Benadryl are my current med based tools for that.
I guess I’ll have to re-check the list of foods that are high in histamine and do what I can within our limits. High K, low histamine foods we can affird…good thing I’ve pretty much given up enjoying food. 🙂
I actually don’t remember the side effects being as bad on Diamox as they are on Neptazane now that you mention it. But, at 300 mg a day I’ll be happy just to dodge kidney stones.
On going from 100 mg to 200 mg I had the best 36 hours I’ve had in months so there’s real hope that once insurance is worked out I’ll be functioning better even if I want to puke the whole time. :).
My goal at the moment is to make the most of the productive time Neptazane gives me because I don’t know how much longer I’ll be able to get scripts for it.
Thanks for replying.
Lisa
edit: is this the best list of histamine containing foods? http://www.chronichives.com/pages/lowhistamine.htm#allowedrestricted. Is ther anything not on it you’d add?

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