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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Tips for Neptazane nausea and taste dysfunction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Tips for Neptazane nausea and taste dysfunction › Reply To: Tips for Neptazane nausea and taste dysfunction

July 9, 2012 at 9:01 pm #2565
Dr. Diana
Keymaster

Hi,
My Neptazane dosage was just changed and the initial side effects are back. So, I thought a thread about how to cope might help people.
Tomatoes tend to taste awful now no matter how prepared. I can’t tolerate coffee at all.
I’m not sure what other foods I can’t stand because it’s been 2 years and we’ve adjusted our diet to include lots of bananas, dried apricots, potatoes, and other high K foods while gradually dropping things I no longer like.

What foods do you like on Neptazane/Diamox that you didn’t like before? What foods still work for you?
Thanks,
Lisa

Hi Lisa, I’m curious if you’ve tried any mast cell medications. One reason I ask is that many of your staples are high in histamine and may be causing mast cell reactions, which cause vessel inflammation, which causes higher intracranial pressure (did you follow that?). If mast cells aren’t an issue for you, no biggy…. I must be a freak I have never noticed ANYTHING tasting differently with Diamox. I’ve heard that Dr. Pepper lovers would rather jump off a bridge than take Diamox because Dr. Pepper tastes lousy… Me? Carbonated beverages taste fine… So I guess I’m the wrong person to ask, huh? 😉 Diana

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