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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: New Here – History Of Mvp, Syncope, Pots, Possible Mast Cell

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › New Here – History Of Mvp, Syncope, Pots, Possible Mast Cell › Reply To: New Here – History Of Mvp, Syncope, Pots, Possible Mast Cell

June 20, 2012 at 7:43 pm #2462
mommy2seanp
Participant

Hi Tristessa,

I share many of your symptoms and have been officially diagnosed with EDS 3, POTS, and probable MCAS (Idiopathic Anaphylaxis, multiple food and drug allergies, chemical sensitivities, etc) My son is 4 1/2 yrs. old and has been diagnosed with EDS 3 and MCAS. His diet is limited to 6-8 foods and has had 5 episodes of anaphylaxis. He just had an appointment with Dr. Castells in Boston who started him on Gastrocom.

Some researchers believe that EDS 3 and POTS is actually MCAS since no genes have been found or associated with EDS 3.